One-day conference on October 17, 2009 - Finding Out More About Neurofibromatosis
Dear Sir or Madam:
The Association de la Neurofibromatose du Québec (ANFQ), in collaboration with a community organizer from the CSSS Antoine-Labelle (Antoine-Labelle health and social services centre), invites you to a one-day conference entitled Finding Out More About Neurofibromatosis, on October 17, 2009. The invitation goes out to everyone, including professionals and the entire population. The purpose of this day is to raise awareness about this disorder among our members, their friends and families, health and education professionals, and the general population, while promoting the Association.
You will have the opportunity to meet with a doctor specialized in genetics and a medical anthropologist familiar with neurofibromatosis, a doctoral student and a specialized resource teacher. The presentations are free. Lunch will be served, for those who wish ($20 for members and $25 for non-members), during which you will be able to converse with the speakers.
Afterwards, we would like to form a mutual support group to help people break their isolation and create ties. You will be given some time to express yourself on the subject, tell us about your needs and give us your suggestions. We would like to ensure the continuity of this endeavour together.
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 | DATE : | Saturday October 17, 2009 |  |
| TIME : | 10h00 à 16h00 | |
| WHERE : | Auberge l’Étape 265, boulevard Albiny-Paquette, Mont-Laurier (QC) Accommodation : Hotel Dynastie 1231 Albiny-Paquette Blvd. (Route 117) Mont-Laurier, Quebec J9L 1M6 Tel.: 819-623-5252 / 1-866-355-5252 Fax: 819-623-7830 info@hoteldynastie.ca / www.hoteldynastie.ca | |
| COST : | 20$ members, 25$ non-members | |
| Directions : | | |
| Google Maps | | |
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| 10:00 - 10:30 | Reception – registration | |
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| 10:30 - 10:35 | Word of introduction | |
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| 10:35 - 11:35 | Presentation by Régen Drouin, MD, PhD, geneticist at the Centre hospitalier universitaire de Sherbrooke (CHUS): Ce que vous devez savoir de la génétique de la neurofibromatose (What you should know about the genetics of neurofibromatosis) | |
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| 11:35 - 1:00 | Lunch | |
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| 1:00 - 2:00 | Presentation by Marie-Josée Duchesne, resource teacher at the Commission scolaire de Montréal: Les difficultés d’apprentissage chez les jeunes atteints de la neurofibromatose (Learning difficulties among children with neurofibromatosis). She is also the author of a binder entitled Vous avez un élève atteint de neurofibromatose dans votre classe? Mieux comprendre votre élève et mieux intervenir (You have a student with neurofibromatosis in your class? Better understanding your student and better intervening) | |
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| 2:00 - 2:15 | Health break | |
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| 2:15 - 3:30 | Presentation by Chantal Bouffard, PhD, medical anthropologist, and Claire-Marie Legendre, doctoral student: Dialogue intergénérationnel et neurofibromatose (Intergenerational dialogue and neurofibromatosis) | |
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| 3:30 - 4:00 | Personal stories and discussions with the participants | |
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| 4:00 - 4:30 | Coffee, juice, cookies and fruit | |
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| 4:30 - 5:00 | Formation of a mutual support group for the Laurentians | |
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Please make your payment to the order of the ANFQ.
Confirmation by fax (514-385-1420)
Confirmation by telephone (514-385-6702)
Confirmation by e-mail ( )
Mailing address for confirmation and/or payment:
9208 Joseph-Melançon
Montréal, Quebec H2M 2H8
This will be a very special day for everyone. We hope to see many of you there. Please note that all activities will be held in French.
Lise Gagner-Frenette, Chair
Hélène L. Pérusse, Secretary
Joanne Turgeon, Treasurer
Diane Hurlbert, Assistant Secretary
Louise L’Africain, Board Member