We are pleased to welcome you to share in the life of our organization whose mission is to support the cause of neurofibromatosis.
Neurofibromatosis is a genetic disorder which affects the skin and the nervous and skeletal systems. It may be inherited from either parent in 50% of cases or result from a spontaneous genetic mutation.
a family activity that will take place on March 20, 2016, at the Grévin Montréal museum.
the Half Marathon Charity Challenge Scotiabank. Support us!
This video traces the lives of people living
with this disorder.
their daily reality,
and their experiences.