What is neurofibromatosis ?

Neurofibromatosis is a genetic disorder which affects the skin and the nervous and skeletal systems. It may be inherited from either parent in 50% of cases or result from a spontaneous genetic mutation.

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L'Entraide NF

L'Entraide NF is a bulletin covering various topics. It pursues the aims of our Association and wants to a service tool for our members.

 L'Entraide NF 2015 is now available !


Reading suggestions

Corps chargrin


This is a touching book, written in French by one of our members of the Neurofibromatosis Association of Quebec

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The ANFQ invites you on January 30, 2016 in Montreal
The ANFQ invites you on January 9, 2016 in Quebec
Invitation to the Annual General Meeting of the ANFQ on May 23, 2015

Invitation to the Annual General Meeting of the ANFQ on May 23, 2015

Fall activity , November 22 at Ste-Justine Hospital
Convocation to the AGM

Convocation to the General Annual Meeting May 31th 2014

Fall Activity, November, 23 2013

 Lecture presented by Line Gascon, PhD(Learning disabilities in people with neurofibromatosis), & Lecture presented by Joël Monzée, PhD, doctor  (Relational issues)

Emerging from the shadows

This video traces the lives of people living
with this disorder.

their daily reality,
their joys,
their disappointments
and their experiences.


To order "Emerging from the shadows"