What is neurofibromatosis ?

Neurofibromatosis is a genetic disorder which affects the skin and the nervous and skeletal systems. It may be inherited from either parent in 50% of cases or result from a spontaneous genetic mutation.

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L'Entraide NF

L'Entraide NF is a bulletin covering various topics. It pursues the aims of our Association and wants to a service tool for our members.

 L'Entraide NF 2016 is now available !


Reading suggestions

Corps chargrin


This is a touching book, written in French by one of our members of the Neurofibromatosis Association of Quebec

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Joint meeting on May 11 at Montreal
Emerging from the shadows

This video traces the lives of people living
with this disorder.

their daily reality,
their joys,
their disappointments
and their experiences.


To order "Emerging from the shadows"